Ginny's Journey: Another FPIES Mom Blogging

We named her Genevieve. We call her Ginny, G, Little G... and sometimes even Goob. She has FPIES - Food Protein Induced Entercolitis Syndrome. The road to a diagnosis was tough, and we have an even longer road ahead of us as we figure out just what we can safely feed her, and work to keep her growing healthy and strong. I'm blogging to keep family and friends up to date as we learn more everyday - and just maybe our story will help other parents as they journey and struggle with FPIES too.

Thursday, September 1, 2011

Check out the FPIES Foundation Support Forum!

Can you tell we're excited? The FPIES Foundation is the realization of months of work and planning - and maybe even years of thinking and dreaming about what what can be done to help FPIES kids and families. So if you haven't checked it out yet, please do so. And did you know that there is a wonderful support forum set up? It's free, easy to use, easy to search, and a great way to connect with other FPIES families. Hope to see you there!

1 comment:

MarySeptember 17, 2011 at 2:18 PM
Jamie,
I just noticed that the foundation is based in Kenmore, Wa. The same town where Bastyr (the school I plan to attend) is located...wow!
ReplyDelete
Replies

Add comment